0001| HOUSE BILL 395 | 0002| 43rd legislature - STATE OF NEW MEXICO - first session, 1997 | 0003| INTRODUCED BY | 0004| DANICE PICRAUX | 0005| | 0006| | 0007| | 0008| | 0009| | 0010| AN ACT | 0011| RELATING TO HEALTH; ENACTING NEW SECTIONS OF THE NMSA 1978 TO | 0012| PROTECT CITIZENS' PRIVACY; PROVIDING FOR LIMITATIONS ON GENETIC | 0013| ANALYSIS AND THE COLLECTION, RETENTION, DISCLOSURE AND USE OF | 0014| GENETIC INFORMATION; PROHIBITING DISCRIMINATION BY INSURERS | 0015| BASED ON GENETIC INFORMATION; PROVIDING PENALTIES. | 0016| | 0017| BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF NEW MEXICO: | 0018| Section 1. SHORT TITLE.--This act may be cited as the | 0019| "Genetic Information Privacy Act". | 0020| Section 2. DEFINITIONS.--As used in the Genetic | 0021| Information Privacy Act: | 0022| A. "DNA" means deoxyribonucleic acid, including | 0023| mitochondrial DNA, complementary DNA and any DNA derived from | 0024| ribonucleic acid (RNA); | 0025| B. "genetic analysis" means a test of the | 0001| individual's DNA, gene products or chromosomes that indicates a | 0002| propensity for or susceptibility to illness, disease, | 0003| impairment or other disorders, whether physical or mental, or | 0004| that demonstrates genetic or chromosomal damage due to | 0005| environmental factors, or carrier status for disease or | 0006| disorder; | 0007| C. "genetic information" means information about | 0008| the genetic makeup of an individual or members of an | 0009| individual's family resulting from genetic analysis, DNA | 0010| composition, participation in genetic research or use of | 0011| genetic services; | 0012| D. "genetic propensity" means the presence in an | 0013| individual or members of an individual's family of real or | 0014| perceived variations in DNA or other genetic material from that | 0015| of the normal genome that do not represent the outward | 0016| physical, medical signs of a genetic disease at the time of | 0017| consideration; E. "insurer" means a person who provides | 0018| health insurance or life insurance; and | 0019| F. "person" means an individual or any other legal | 0020| entity. | 0021| Section 3. DNA OWNERSHIP--RIGHTS OF OWNERSHIP--GENETIC | 0022| ANALYSIS PROHIBITED WITHOUT PERMISSION OF OWNER.-- | 0023| A. An individual's DNA, results derived from | 0024| genetic analysis and genetic information are the property of | 0025| the individual. | 0001| B. Except as provided in Subsection C of this | 0002| section, genetic analysis of an individual and collection, | 0003| retention, transmission or use of genetic information without | 0004| the written informed consent of the individual or the | 0005| individual's authorized representative is prohibited. | 0006| C. Genetic information and the results of genetic | 0007| analysis may be obtained without the individual's written and | 0008| informed consent only as authorized by law or rules of the | 0009| department of public health: | 0010| (1) to identify an individual in the course of | 0011| a criminal investigation by a law enforcement agency; | 0012| (2) to identify deceased individuals; | 0013| (3) to establish parental identity; | 0014| (4) to screen newborns; | 0015| (5) if the DNA, genetic analysis, results or | 0016| genetic information is not identified with the individual or | 0017| individual's family member; or | 0018| (6) by a court for determination of damage | 0019| awards pursuant to this subsection. | 0020| Section 4. GENETIC DISCRIMINATION PROHIBITED.-- | 0021| Discrimination by an insurer against an individual or member of | 0022| the individual's family on the basis of genetic analysis for | 0023| genetic propensity, susceptibility or carrier status for a | 0024| disease or disorder or genetic information regarding the | 0025| participation in genetic research or use of genetic services is | 0001| prohibited. | 0002| Section 5. PENALTIES.-- | 0003| A. The attorney general or district attorney may | 0004| bring a civil action against a person for violating the | 0005| provisions of the Genetic Information Privacy Act or to | 0006| otherwise enforce those provisions. | 0007| B. An individual whose rights pursuant to the | 0008| provisions of the Genetic Information Privacy Act have been | 0009| violated may bring a civil action for damages or other relief. | 0010| C. The court may order a person who violates the | 0011| provisions of the Genetic Information Privacy Act to comply | 0012| with those provisions and may order other appropriate relief, | 0013| including: | 0014| (1) directing the person to provide a policy | 0015| for hospital and medical expenses, including health insurance, | 0016| group disability insurance or long-term-care coverage, to the | 0017| injured individual under the same terms and conditions as would | 0018| have applied had the violation not occurred; | 0019| (2) damages for economic, bodily or emotional | 0020| harm; | 0021| (3) damages for economic losses sustained as a | 0022| result of negligent violation of that act; | 0023| (4) damages of up to five thousand dollars | 0024| ($5,000) in addition to any economic loss if the violation | 0025| results from willful or grossly negligent conduct; or | 0001| (5) treble damages if the violation resulted | 0002| in profit or monetary gain to the insurer or other person; and | 0003| (6) if the plaintiff prevails, recovery of | 0004| reasonable attorney fees and all appropriate court costs from | 0005| the defendant. | 0006| D. Pursuant to Subsection C of Section 3 of the | 0007| Genetic Information Privacy Act the court may use genetic | 0008| information to determine the cause of damage or injury and | 0009| penalty awards. | 0010| E. Each instance of collection, analysis, | 0011| retention, disclosure or use of genetic information constitutes | 0012| a separate and actionable violation of the Genetic Information | 0013| Privacy Act. | 0014|  | 0015| State of New Mexico | 0016| House of Representatives | 0017| | 0018| FORTY-THIRD LEGISLATURE | 0019| FIRST SESSION, 1997 | 0020| | 0021| | 0022| February 19, 1997 | 0023| | 0024| | 0025| Mr. Speaker: | 0001| | 0002| Your JUDICIARY COMMITTEE, to whom has been referred | 0003| | 0004| HOUSE BILL 395 | 0005| | 0006| has had it under consideration and reports same WITHOUT | 0007| RECOMMENDATION, amended as follows: | 0008| | 0009| 1. On page 2, line 21, strike "An", and insert in lieu | 0010| thereof "Except as provided in Subsection D of this section, an". | 0011| | 0012| 2. On page 3, line 7, strike "public". | 0013| | 0014| 3. On page 3, line 15, strike "or". | 0015| | 0016| 4. On page 3, line 17, strike the period and insert in lieu | 0017| thereof a semicolon. | 0018| | 0019| 5. On page 3, between lines 17 and 18, insert the following | 0020| subparagraphs and subsection: | 0021| | 0022| "(7) by medical repositories or registries, as | 0023| authorized by federal or state laws or regulations; or | 0024| | 0025| (8) for purposes of medical or scientific | 0001| research and education, including retention of genetic analysis, | 0002| information, results and tissues, where the identity of | 0003| individuals or individuals' family members will not be disclosed. | 0004| | 0005| D. An individual's DNA, results derived from genetic | 0006| analysis and genetic information obtained or retained by an | 0007| authorized medical repository or registry, or other institution | 0008| authorized by rules of the department of health, will be the | 0009| property of the authorized repository, registry or institution.". | 0010| | 0011| 6. On page 3, between lines 9 and 10 insert the following: | 0012| | 0013| "(2) if the individual has been convicted of a | 0014| felony and is in the custody of the New Mexico Department of | 0015| Corrections, for purposes of maintaining a DNA data base for law | 0016| enforcement purposes;". | 0017| | 0018| 7. Renumber the succeeding paragraphs accordingly. | 0019| | 0020| Respectfully submitted, | 0021| | 0022| | 0023| | 0024| | 0025| | 0001| Thomas P. Foy, Chairman | 0002| | 0003| | 0004| Adopted Not Adopted | 0005| | 0006| (Chief Clerk) (Chief Clerk) | 0007| | 0008| Date | 0009| | 0010| The roll call vote was 8 For 0 Against | 0011| Yes: 8 | 0012| Excused: Alwin, Luna, Rios, Sanchez, Pederson | 0013| Absent: None | 0014| | 0015| | 0016| | 0017| .117038.1G:\BILLTEXT\BILLW_97\H0395 State of New Mexico | 0018| House of Representatives | 0019| | 0020| FORTY-THIRD LEGISLATURE | 0021| FIRST SESSION, 1997 | 0022| | 0023| | 0024| March 4, 1997 | 0025| | 0001| | 0002| Mr. Speaker: | 0003| | 0004| Your BUSINESS AND INDUSTRY COMMITTEE, to whom | 0005| has been referred | 0006| | 0007| HOUSE BILL 395, as amended | 0008| | 0009| has had it under consideration and reports same with | 0010| recommendation that it DO NOT PASS, but that | 0011| | 0012| HOUSE BUSINESS AND INDUSTRY COMMITTEE SUBSTITUTE | 0013| FOR | 0014| HOUSE BILL 395 | 0015| | 0016| DO PASS, amended as follows: | 0017| | 0018| 1. On page 3, line 10, delete "authorized". | 0019| | 0020| 2. On page 6, line 21, delete "person" and insert | 0021| "insurer"., | 0022| | 0023| Respectfully submitted, | 0024| | 0025| | 0001| | 0002| | 0003| | 0004| Fred Luna, Chairman | 0005| | 0006| | 0007| Adopted Not Adopted | 0008| | 0009| (Chief Clerk) (Chief Clerk) | 0010| | 0011| Date | 0012| | 0013| The roll call vote was 7 For 0 Against | 0014| Yes: 7 | 0015| Excused: Alwin, Hobbs, Lutz, J.G. Taylor, Varela | 0016| Absent: Getty | 0017| | 0018| | 0019| | 0020| G:\BILLTEXT\BILLW_97\H0395 | 0021| HOUSE BUSINESS AND INDUSTRY COMMITTEE SUBSTITUTE FOR | 0022| HOUSE BILL 395 | 0023| 43rd legislature - STATE OF NEW MEXICO - first session, 1997 | 0024| | 0025| | 0001| | 0002| | 0003| | 0004| | 0005| | 0006| AN ACT | 0007| RELATING TO HEALTH; ENACTING NEW SECTIONS OF THE NMSA 1978 TO | 0008| PROTECT CITIZENS' PRIVACY; PROVIDING FOR LIMITATIONS ON GENETIC | 0009| ANALYSIS AND THE COLLECTION, RETENTION, DISCLOSURE AND USE OF | 0010| GENETIC INFORMATION; PROHIBITING DISCRIMINATION BY INSURERS | 0011| BASED ON GENETIC INFORMATION; PROVIDING PENALTIES. | 0012| | 0013| BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF NEW MEXICO: | 0014| Section 1. SHORT TITLE.--This act may be cited as the | 0015| "Genetic Information Privacy Act". | 0016| Section 2. DEFINITIONS.--As used in the Genetic | 0017| Information Privacy Act: | 0018| A. "DNA" means deoxyribonucleic acid, including | 0019| mitochondrial DNA, complementary DNA and any DNA derived from | 0020| ribonucleic acid; | 0021| B. "gene products" means gene fragments, | 0022| ribonucleic acids or proteins derived from DNA that would be a | 0023| reflection of or indicate DNA sequence information; | 0024| C. "genetic analysis" means a test of the | 0025| individual's DNA, gene products or chromosomes that indicates a | 0001| propensity for or susceptibility to illness, disease, | 0002| impairment or other disorders, whether physical or mental, or | 0003| that demonstrates genetic or chromosomal damage due to | 0004| environmental factors, or carrier status for disease or | 0005| disorder; | 0006| D. "genetic information" means information about | 0007| the genetic makeup of an individual or members of an | 0008| individual's family resulting from genetic analysis, DNA | 0009| composition, participation in genetic research or use of | 0010| genetic services; | 0011| E. "genetic propensity" means the presence in an | 0012| individual or members of an individual's family of real or | 0013| perceived variations in DNA or other genetic material from that | 0014| of the normal genome that do not represent the outward | 0015| physical, medical signs of a genetic disease at the time of | 0016| consideration; F. "insurer" means an insurance company, | 0017| insurance service or insurance organization that is licensed to | 0018| engage in the business of insurance in the state and that is | 0019| subject to state law that regulates insurance within the | 0020| meaning of Paragraph (2) of Subsection (b) of Section 514 of | 0021| the federal Employee Retirement Income Security Act of 1974, as | 0022| amended. "Insurer" does not include an insurance company that | 0023| is licensed under the Prepaid Dental Plan Law or a company that | 0024| is solely engaged in the sale of dental insurance and is not | 0025| licensed under that act, but under another provision of the New | 0001| Mexico Insurance Code; and | 0002| G. "person" means an individual or any other legal | 0003| entity. | 0004| Section 3. GENETIC ANALYSIS PROHIBITED WITHOUT INFORMED | 0005| CONSENT--EXCEPTIONS.-- | 0006| A. Except as provided in Subsection C of this section, | 0007| no person shall obtain genetic information or samples for genetic | 0008| analysis from an individual without first obtaining informed | 0009| consent from the individual or the individual's authorized | 0010| representative. | 0011| B. Except as provided in Subsection C of this section, | 0012| genetic analysis of an individual and collection, retention, | 0013| transmission or use of genetic information without the written | 0014| informed consent of the individual or the individual's authorized | 0015| representative is prohibited. | 0016| C. An individual's DNA or genetic information or the | 0017| results of genetic analysis may be obtained or retained without | 0018| the individual's written and informed consent only as authorized | 0019| by law or rules of the department of health: | 0020| (1) to identify an individual in the course of a | 0021| criminal investigation by a law enforcement agency; | 0022| (2) if the individual has been convicted of a | 0023| felony and is in the custody of the corrections department, for | 0024| purposes of maintaining a DNA database for law enforcement | 0025| purposes; | 0001| (3) to identify deceased individuals; | 0002| (4) to establish parental identity; | 0003| (5) to screen newborns; | 0004| (6) if the DNA, genetic analysis, results or | 0005| genetic information is not identified with the individual or | 0006| individual's family member; | 0007| (7) by a court for determination of damage | 0008| awards pursuant to this subsection; | 0009| (8) by medical repositories or registries, as | 0010| authorized by federal or state law or regulation; | 0011| (9) for the purpose of medical or scientific | 0012| research and education, including retention of genetic analysis, | 0013| information, results and tissues, where the identity of | 0014| individuals or individuals' family members will not be disclosed; | 0015| or | 0016| (10) for the purpose of emergency medical | 0017| treatment consistent with applicable law. | 0018| D. Actions of an insurer and third parties dealing | 0019| with an insurer in the ordinary course of conducting and | 0020| administering the business of life, disability income or long-term | 0021| care insurance are exempt from the provisions of this section. | 0022| However, before or at the time of collecting genetic information | 0023| for use in conducting and administering life, disability income or | 0024| long-term care insurance, the insurer shall notify in writing an | 0025| applicant for insurance or the insured that the information may be | 0001| used, transmitted or retained. | 0002| Section 4. GENETIC DISCRIMINATION PROHIBITED.-- | 0003| A. Discrimination by an insurer against an individual | 0004| or member of the individual's family on the basis of genetic | 0005| analysis for genetic propensity, susceptibility or carrier status | 0006| for a disease or disorder or genetic information regarding the | 0007| participation in genetic research or use of genetic services is | 0008| prohibited. No insurer shall use any genetic analysis or any | 0009| genetic information for any purpose other than in the ordinary | 0010| conduct of business in connection with life, disability income or | 0011| long-term care insurance. | 0012| B. The provisions of this section do not require a | 0013| health insurer to provide particular benefits other than those | 0014| provided under the terms of the plan or coverage or prevent the | 0015| plan or coverage from establishing limitations or restrictions on | 0016| the amount, level, extent or nature of the benefits or coverage | 0017| for similarly situated individuals. Individuals are similarly | 0018| situated if they have manifested similar physical or mental | 0019| conditions whether or not they have genetic propensity, | 0020| susceptibility or carrier status. A health insurer shall not | 0021| consider a genetic propensity, susceptibility or carrier status as | 0022| a preexisting condition for the purpose of limiting or excluding | 0023| benefits in the absence of a diagnosis of the condition related to | 0024| or resulting from the genetic propensity, susceptibility or | 0025| carrier status. | 0001| C. The provisions of this section do not prohibit use | 0002| of any genetic analysis of any genetic information by an insurer | 0003| in the ordinary conduct of business in connection with life, | 0004| disability income or long-term care insurance, provided that any | 0005| underwriting action taken in connection with life, disability | 0006| income or long-term care insurance on the basis of any genetic | 0007| analysis or any genetic information is based on sound actuarial | 0008| principles or related to actual or reasonably anticipated | 0009| experience. | 0010| Section 5. PENALTIES.-- | 0011| A. The attorney general or district attorney may bring | 0012| a civil action against a person for violating the provisions of | 0013| the Genetic Information Privacy Act or to otherwise enforce those | 0014| provisions. | 0015| B. An individual whose rights pursuant to the | 0016| provisions of the Genetic Information Privacy Act have been | 0017| violated may bring a civil action for damages or other relief. | 0018| C. The court may order a person who violates the | 0019| provisions of the Genetic Information Privacy Act to comply with | 0020| those provisions and may order other appropriate relief, | 0021| including: | 0022| (1) directing an insurer to provide a policy for | 0023| hospital and medical expenses, including health insurance, group | 0024| disability insurance or long-term-care coverage, to the injured | 0025| individual under the same terms and conditions as would have | 0001| applied had the violation not occurred; | 0002| (2) damages for economic, bodily or emotional | 0003| harm; | 0004| (3) damages for economic losses sustained as a | 0005| result of negligent violation of that act; | 0006| (4) damages of up to five thousand dollars | 0007| ($5,000) in addition to any economic loss if the violation results | 0008| from willful or grossly negligent conduct; or | 0009| (5) if the plaintiff prevails, recovery of | 0010| reasonable attorney fees and all appropriate court costs from the | 0011| defendant. | 0012| D. Pursuant to Subsection C of Section 3 of the | 0013| Genetic Information Privacy Act, the court may use genetic | 0014| information to determine the cause of damage or injury and penalty | 0015| awards. | 0016| E. Each instance of collection, analysis, retention, | 0017| disclosure or use of genetic information constitutes a separate | 0018| and actionable violation of the Genetic Information Privacy Act. | 0019| Section 6. RIGHTS OF RETENTION.-- | 0020| A. Unless otherwise authorized by Subsection C of | 0021| Section 3 of the Genetic Information Privacy Act, no person shall | 0022| retain an individual's genetic information, gene product or | 0023| samples for genetic analysis without first obtaining informed | 0024| consent from the individual or the individual's authorized | 0025| representative. This subsection does not affect the status of | 0001| original medical records of individual patients and the rules of | 0002| confidentiality and accessibility applicable to thee records | 0003| continue in force. | 0004| B. An individual's genetic information or samples for | 0005| genetic analysis shall be destroyed promptly upon the specific | 0006| request of that individual or that individual's authorized | 0007| representative, unless: | 0008| (1) retention is necessary for the purposes of a | 0009| criminal or death investigation or a criminal or juvenile | 0010| proceeding; | 0011| (2) retention is authorized by order of a court | 0012| of competent jurisdiction; | 0013| (3) retention is authorized under a research | 0014| protocol approved by an institutional review board pursuant to | 0015| federal law or a medical registry or repository authorized by | 0016| state or federal law; or | 0017| (4) the genetic information or samples for | 0018| genetic analysis have been obtained pursuant to Subsection C of | 0019| Section 3 of the Genetic Information Privacy Act. | 0020| C. Actions of an insurer and third parties dealing | 0021| with an insurer in the ordinary course of conducting and | 0022| administering the business of life, disability income or long-term | 0023| care insurance are exempt from the provisions of this section. | 0024| However, before or at the time of collecting genetic information | 0025| for use in conducting and administering life, disability income or | 0001| long-term care insurance, the insurer shall notify in writing an | 0002| applicant for insurance or the insured that the information may be | 0003| used, transmitted or retained. | 0004| | 0005| FORTY-THIRD LEGISLATURE | 0006| FIRST SESSION, 1997 | 0007| | 0008| | 0009| March 12, 1997 | 0010| | 0011| Mr. President: | 0012| | 0013| Your CORPORATIONS & TRANSPORTATION COMMITTEE, to | 0014| whom has been referred | 0015| | 0016| HOUSE BUSINESS AND INDUSTRY COMMITTEE SUBSTITUTE FOR | 0017| HOUSE BILL 395, as amended | 0018| | 0019| has had it under consideration and reports same with recommendation | 0020| that it DO PASS. | 0021| | 0022| Respectfully submitted, | 0023| | 0024| | 0025| | 0001| __________________________________ | 0002| Roman M. Maes, III, Chairman | 0003| | 0004| | 0005| | 0006| Adopted_______________________ Not Adopted_______________________ | 0007| (Chief Clerk) (Chief Clerk) | 0008| | 0009| | 0010| | 0011| Date ________________________ | 0012| | 0013| | 0014| The roll call vote was 7 For 0 Against | 0015| Yes: 7 | 0016| No: 0 | 0017| Excused: Fidel, Griego, Robinson | 0018| Absent: None | 0019| | 0020| | 0021| H0395CT1 | 0022| FORTY-THIRD LEGISLATURE | 0023| FIRST SESSION | 0024| | 0025| | 0001| | 0002| | 0003| March 18, 1997 | 0004| | 0005| | 0006| SENATE FLOOR AMENDMENT number _______ to | 0007| H | 0008| O | 0009| U | 0010| S | 0011| E | 0012| B | 0013| U | 0014| S | 0015| I | 0016| N | 0017| E | 0018| S | 0019| S | 0020| A | 0021| N | 0022| D | 0023| I | 0024| N | 0025| D | 0001| U | 0002| S | 0003| T | 0004| R | 0005| Y | 0006| C | 0007| O | 0008| M | 0009| M | 0010| I | 0011| T | 0012| T | 0013| E | 0014| E | 0015| S | 0016| U | 0017| B | 0018| S | 0019| T | 0020| I | 0021| T | 0022| U | 0023| T | 0024| E | 0025| F | 0001| O | 0002| R | 0003| H | 0004| O | 0005| U | 0006| S | 0007| E | 0008| B | 0009| I | 0010| L | 0011| L | 0012| 3 | 0013| 9 | 0014| 5 | 0015| , | 0016| a | 0017| s | 0018| a | 0019| m | 0020| e | 0021| n | 0022| d | 0023| e | 0024| d | 0025| | 0001| Amendment sponsored by Senator Dede Feldman | 0002| | 0003| 1. Strike House Business and Industry Committee Amendment 1. | 0004| | 0005| 2. On page 3, line 11, strike "authorized". | 0006| | 0007| 3. On page 4, line 22, after "this section" insert ", provided | 0008| that any use of genetic analysis or any genetic information is based | 0009| on sound actuarial principles or related to actual or reasonable | 0010| anticipated experience". | 0011| | 0012| 4. On page 5, line 2, after "retained" insert "solely for the | 0013| purpose of conducting and administering the business of life, | 0014| disability income or long-term care insurance". | 0015| | 0016| 5. On page 5, line 12, after "insurance" insert ", provided | 0017| that any use of genetic analysis or any genetic information is based | 0018| on sound actuarial principles or related to actual or reasonable | 0019| anticipated experience". | 0020| | 0021| 6. On page 8, line 25, after "retained" insert "solely for the | 0022| purpose of conducting and administering the business of life, | 0023| disability income or long-term care insurance". | 0024| | 0025| | 0001| | 0002| | 0003| | 0004| __________________________ | 0005| Dede Feldman | 0006| | 0007| | 0008| | 0009| Adopted ___________________ Not Adopted _______________________ | 0010| (Chief Clerk) (Chief Clerk) | 0011| | 0012| | 0013| Date _________________ |